Faryn

Female, 9 yrs

Child’s Story: 

In late 2010 Faryn was born at 24 weeks and 5 days weighing 1.1 pounds, just 15 weeks and 2 days shy of being full term. Following her birth, Faryn was immediately intubated allowing machines to breathe for her since her lungs were to weak and premature to do it for her. All of her bodily functions were maintained by machines; heated bed to maintain her body temperature, machines to her breathe, machines to help her eat, etc….

 Over the course of her life Faryn has battled pneumonia, medically induced coma, infections, illnesses and numerous set backs. Her first surgery at three months old to prevent her from going blind was just the first of many. Over the last nine years Faryn has had numerous minor and major surgeries including but not limited to airway broncs, ear-tubes placements, fundoplication, tracheostomy surgery and major surgery on her airway in hope of decannulation. Unfortunately, the airway reconstructive surgery failed and we decided against a more invasive and risky surgery.  Recently, Faryn under went a sleep study in the hopes the trache could be removed this year but we were extremely surprised to discovered she failed the study ultimately meaning we have to wait another year for  decannulation while determining why she failed in the first place. 

Faryn’s motor and social skills  have greatly improved but we are still working on her feeding and eating skills. Due the fact that Faryns lungs work three times harder than a child her age and the fact that she is very active affects her weight. At 9 years old Faryn is  finally gaining weight (finally weighing 50lbs) thanks to the intense feeding therapy program at the Marcus Autism Center. While she accepts new foods allowing us to open up her diet she still doesn’t chew causing her diet extremely specific and expensive.  While Faryn is a smart, happy and independent child who has overcome major life hurdles, we still have a long way to go. She sees her peers eating, playing and doing things she cant (fully) do and it breaks my heart. While she is special she still wants to be like everyone else. 

Hobbies:

Anything from Dora and the Lost Center of Gold. She absolutely loves this movie.

 Spanish Flashcards- she is super dedicated and interested in learning Spanish

 Music- she loves all instruments

 The Odd Squad- She loves the show and wants to be an agent. 

Needs:

Pants, Shirts, Shoes, Training bras, underwear and tshirts, Math Flashcard for division and Multiplication – 3rd grade

Wants:
Baby Alive Step and Giggle-

https://www.amazon.com/BA-Step-Giggle-Baby-BR/dp/B07MM2GG9Y

Gravity maze- https://www.amazon.com/ThinkFun-Gravity-Marble-Logic-Girls/dp/B00IUAAK2A/ref=sr_1_16?fst=as%3Aoff&pf_rd_i=165793011&pf_rd_m=ATVPDKIKX0DER&pf_rd_p=60afc2f0-1907-4bac-a13d-db92db3dec5d&pf_rd_r=3MD6D083YWZAJ2TRTHVH&pf_rd_s=merchandised-search-3&pf_rd_t=101&qid=1571017650&refinements=p_n_age_range%3A5442387011&rnid=165794011&s=toys-and-games&sr=1-16

JoJo Siwa Styling Head – https://www.amazon.com/JoJo-Siwa-Bows-Bling-Styling/dp/B077HZM92F/ref=sr_1_37?fst=as%3Aoff&pf_rd_i=165793011&pf_rd_m=ATVPDKIKX0DER&pf_rd_p=60afc2f0-1907-4bac-a13d-db92db3dec5d&pf_rd_r=3MD6D083YWZAJ2TRTHVH&pf_rd_s=merchandised-search-3&pf_rd_t=101&qid=1571017708&refinements=p_n_age_range%3A5442387011&rnid=165794011&s=toys-and-games&sr=1-37

Base Ten Blocks- https://www.amazon.com/Learning-Resources-Mathlink-Educational-Counting/dp/B000URL296/ref=sr_1_150?fst=as%3Aoff&pf_rd_i=165793011&pf_rd_m=ATVPDKIKX0DER&pf_rd_p=60afc2f0-1907-4bac-a13d-db92db3dec5d&pf_rd_r=3MD6D083YWZAJ2TRTHVH&pf_rd_s=merchandised-search-3&pf_rd_t=101&qid=1571017929&refinements=p_n_age_range%3A5442387011&rnid=165794011&s=toys-and-games&sr=1-150

Jojo Siwa Watch- https://www.amazon.com/gp/product/B07T5GBT9W/ref=ox_sc_saved_title_1?smid=ATVPDKIKX0DER&psc=1

Unicorn Toy -https://www.amazon.com/Little-Live-Pets-Unicorn-Butterbow/dp/B079DDF5J4/ref=sr_1_498?fst=as%3Aoff&pf_rd_i=165793011&pf_rd_m=ATVPDKIKX0DER&pf_rd_p=60afc2f0-1907-4bac-a13d-db92db3dec5d&pf_rd_r=3MD6D083YWZAJ2TRTHVH&pf_rd_s=merchandised-search-3&pf_rd_t=101&qid=1571018741&refinements=p_n_age_range%3A5442387011&rnid=165794011&s=toys-and-games&sr=1-498&th=1

Pop Up Pirate- https://www.amazon.com/TOMY-T7028A1-Pop-Up-Pirate/dp/B00000JICB/ref=sr_1_391?fst=as%3Aoff&pf_rd_i=165793011&pf_rd_m=ATVPDKIKX0DER&pf_rd_p=60afc2f0-1907-4bac-a13d-db92db3dec5d&pf_rd_r=3MD6D083YWZAJ2TRTHVH&pf_rd_s=merchandised-search-3&pf_rd_t=101&qid=1571018572&refinements=p_n_age_range%3A5442387011&rnid=165794011&s=toys-and-games&sr=1-391